Who's Involved
Accelerated Cure Project, Inc. (ACP) and its research initiative, the iConquerMS™ People-Powered Research Network (PPRN) (www.iConquerMS.org), is partnering with the U.S. Veterans Administration, digital therapy company GAIA AG, Charité-Universitätsmedizin Berlin, the University of Göttingen, and Ordinal Data, Inc., on this four-year project to conduct a clinical trial of internet-based programs for managing fatigue in multiple sclerosis (MS).
Accelerated Cure Project (ACP) is a patient-founded non-profit organization dedicated to accelerating research efforts to improve the health, healthcare and quality of life of people affected by MS. The organization promotes scientific collaboration and accelerates research by rapidly and cost-effectively providing researchers worldwide with people, data, and biosample resources they need to explore novel research ideas that can lead to cures and better care for people living with MS. The major programs of ACP are the ACP Repository, the iConquerMS People-Powered Research Network, the Research Inclusivity, Diversity and Equity Council, and the MS Minority Research Engagement Partnership Network.
iConquerMS is a research initiative by and for individuals living with MS who contribute their ideas and their health data. iConquerMS was established in 2014 by the ACP, in partnership with Feinstein Kean Healthcare and Arizona State University. Over 8,500 individuals living with MS are currently registered as iConquerMS members, constituting a large and growing cohort for data-driven research into topics that matter most to people affected by MS. iConquerMS achieves its purpose, to improve the health, healthcare and quality of life of people affected by MS, through collaborations with U.S. and international academic, government, and industry organizations.
The Department of Veterans Affairs (VA) Multiple Sclerosis Centers of Excellence (MSCoE) are dedicated to furthering the understanding of multiple sclerosis (MS) in military Veterans, and ensuring access to effective treatments to help manage MS and its associated symptoms. effective treatments to help manage MS. By partnering with Veterans, caregivers, health care professionals, MS advocates, Veteran service organizations, and community health care institutes, the MSCoE strives to minimize impairment and maximize quality of life for Veterans with MS. The Department of Veterans Affairs actively manages approximately 20,000 Veterans with MS each year. VA MSCoE sites participating in this study include Baltimore, Washington, DC, Nashville, Portland, and Seattle.
GAIA is the global pioneer in the research and development of evidence-based digital therapeutics. With over 200 employees at two research sites in Germany and the USA, GAIA is helping to shape the future of healthcare by providing fully automated, effective, and safe therapeutics for patients suffering from some of the most common chronic diseases such as depression, multiple sclerosis and rheumatoid arthritis. In Germany alone, GAIA has six DTx that are generally reimbursed. In more than 20 randomized controlled trials as well as in various clinical settings in Europe, South America, and the USA, GAIA’s products have proven their efficacy, effectiveness, and safety. For more information, please visit https://gaia-group.com/en/.
Charité-Universitätsmedizin Berlin is one of Europe’s largest university medical centers, where the areas of research, teaching, and medical and patient care are closely interconnected. Charité is one of the capital city’s largest employers where over 5,200 staff in research and medicine provide care for more than 125,000 inpatients and about 740,000 outpatients per year.
The University Medical Center Göttingen (UMG) unites the Medical Faculty of the Georg-August University and the University Hospital in an integration model. In addition to research and teaching, patient care is the third central focus of the UMG. With around 1,600 inpatient and day-care beds, the hospital is the only maximum care provider in southern Lower Saxony. With almost 9,700 employees, the UMG and its subsidiaries are one of the largest employers in the region. Around 60 clinical and research departments stand for high-quality patient care, excellent research and modern teaching. All basic medical disciplines are represented, as well as a wide range of specialist medical disciplines in diagnostics and therapy. Every year, the UMG treats around 60,000 inpatients and around 220,000 outpatients. Further information: https://www.umg.eu/.
Göttingen as a city of science is located in the center of Germany and the University Medical Center is integrated into an attractive network of university and non-university scientific institutions.
Ordinal Data, Inc. is a highly experienced team of information technology professionals energized by opportunities to accelerate improvements in healthcare and research. They develop, integrate, and apply innovative information technology to accelerate clinical research, nurture patient communities, improve health care quality and comparative effectiveness, and to gain better insights and efficiencies in the management of research programs.